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Emily Rapp's Still Point of the Turning World, a story about mothering a child with Tay-Sachs.
Becky Benson's Three Short Years: Life Lessons in the Death of My Child, a story about loving a child with Tay-Sachs.
Blyth Lord's DVD on how to help families and doctors provide palliative care to their Tay-Sachs children.
Notes From a Dragon Mom
by Emily Rapp
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