TSAPO's primary mission is to prevent Tay-Sachs in the general population. We accomplish this mission through our Healthy Family Grant Program and our Genealogical Carrier Testing Program described below. In addition, we have two prevention initiatives that we hope will further our mission.
TSAPO helps families affected by Tay-Sachs and Allied Diseases build a healthy family through grants for assisted reproductive technology and adoption. These grants are available to couples who have already loved and cared for a baby with Tay-Sachs and who would like to have additional children unaffected by Tay-Sachs. Please review the eligibility requirements and application submission checklist before applying. We sincerely appreciate your interest in our grant program and wish you the best of luck! We hope to open our program up to additional genetic diseases that affect our children. If you think our program could benefit families struggling with a different, but still terminal genetic disease, please let us know by contacting us below.
TSAPO employs genealogical research from families who currently have a child affected by Tay-Sachs to locate and test extended family members who are at increased risk of carrying a Tay-Sachs mutation due to their common ancestry. We are focusing on Infantile Tay-Sachs, but if we are successful we hope to apply it to related diseases. Please view our Genealogical Carrier Testing Program tab for more information and to submit your carrier test results!
TSAPO is working on two other initiatives. The first is collecting carrier and mutation information in order to determine if there are additional high-risk groups and to preserve mutation information for a mutation registry. The second is surveying carriers of Infantile Tay-Sachs to determine if we share any physical characteristics that can be used to screen the general population when deciding who to test for Tay-Sachs instead of relying solely on ethnicity. Please view our Prevention Initiatives tab for more information and to submit your carrier and mutation test results or sign up to receive our Characteristics Survey.